Name
Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life- Meeting #1
Date & Time
Thursday, March 23, 2023, 1:30 PM - 3:00 PM
Location
About this Session

Amyotrophic Lateral Sclerosis (ALS) is a rapidly progressive, invariably fatal neurological disease that attacks motor neurons and leads to their gradual degeneration and death, often within two years of onset. Currently, no treatments exist to stop or reverse the disease. This is the first meeting of a study committee mandated by Congress and sponsored by the National Institutes of Health to identify and recommend key actions for federal agencies, the pharmaceutical industry, and nongovernmental organizations to undertake to make ALS a livable disease within a decade. The committee will consider the landscape of ALS therapeutic development, care, services, and supports.